Reporting anaphylaxis deaths to UK Fatal Anaphylaxis Registry (UKFAR)

The UK Fatal Anaphylaxis Registry (UKFAR) thanks The BMJ for highlighting the regulation 28 report to prevent future deaths on Alexandra Briess, aged 17,1 and its ramifications for the wider medical community.Financial assistance and information sharing is required for UKFAR to function effectively. The reporting of anaphylaxis fatalities to UKFAR is not mandatory. There is a common law legal basis in place for this information sharing. UKFAR writes to NHS trusts, GP surgeries, pathologists, and coroners requesting information when notified of an anaphylaxis death.Of the 570 anaphylaxis deaths between 2006 and 2022 that UKFAR is aware of, information is lacking completely or partially in 345 cases.A recurring barrier to exchange of information is the application of the General Data Protection Regulation (GDPR). GDPR does not cover the deceased. Efforts from UKFAR to receive medical information and review these deaths are impaired. This makes learning and developing recommendations to prevent further…
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