Opinion: Listen: A parent on advocating for people with autism who can’t advocate for themselves
Alison Singer learned how to advocate for a child with autism by watching her mother do it for her brother. When Singer had her own child with autism, Jodie, she immediately got involved with the activist community. But Jodie’s condition doesn’t look like the kind seen in television shows like “Atypical” or “Love on the Spectrum.” She needs special support 24 hours a day.
A 2013 update to the Diagnostic and Statistical Manual of Mental Disorders, the so-called bible of psychiatry, gathered virtually all people with autism under the broad diagnosis of “autism spectrum disorder.” This week on the “First Opinion Podcast,” Singer breaks down why she believes the use of this overarching label fails to take people like Jodie into account, and why she’s pushing for a new, more specific label: “profound autism.”
