Let’s find a way to work together

In 2015 I experienced varicella zoster virus meningoencephalitis and was left with an acquired brain injury. The fallout has affected every area of my life, and is impossible to predict. I was unprepared for the downward spiral that my brain and body would enter. I have had more than 30 MRI, PET, and CT scans, as well as x ray imaging, multiple biopsies, a lifesaving ileostomy, and more than 400 vials of blood taken.Managing day-to-day living with a brain injury and all my other conditions affects me in ways that medical professionals are often unable to comprehend. Daily, my injured brain is trying to juggle too many balls. Ask too much of it and it drops a few. Things like bright light, noise, or asking me questions while putting an intravenous line into my arm can often reduce my cognitive functions. I manage to adapt and compensate with a respectful…
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