Patients have important roles in funding and dissemination too

Amsen describes how the research community is gradually understanding how to involve patients in the teams that deliver research and discusses some of the challenges around this.1With greater engagement of patients in the initiation, co-design, and delivery of research, there needs to be greater recognition by funding bodies that involving those with lived experience in the assessment of applications is just as important.The Aortic Dissection Charitable Trust ([email protected]) awards research grants to recipients decided by its research advisory group (https://aorticdissectioncharitabletrust.org/research/). The group has an equal number of members with lived experience and research scientists or healthcare professionals. Although those with lived experience and professionals assess different aspects of the applications, the final assessment process gives equal weight to each.Such partnership is also valuable in the dissemination of research findings. Webinars or short films in which the roles of different members of the team and the outcomes of a research study…
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