Resources to facilitate patient engagement in research

The crucial voice in Amsen’s informative article about patients’ involvement in research projects is that of patient partner Dana Lewis, who shared her experiences, both positive and difficult, in partnering with health researchers.1 The difficulties arose, she noted, from some researchers’ lack of familiarity with the concept and process of engaging with patients like her in the design, conduct, and reporting of clinical studies.Lack of familiarity looms as one of the biggest challenges to achieving a clinical research enterprise that is truly patient centred. In addition to many researchers’ inexperience in working with patient members of research teams, patients and care givers who want to contribute typically know of or have access to few opportunities to learn about research principles, design, and processes.Fortunately, an increasing number of resources designed to foster and support engagement in research are being produced to facilitate robust engagement and carry forward lessons learnt from successful…
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