Opinion: My stalled relay race to get access to ALS drugs in development
One night in November 2018, I fell while crossing a street in Subic Bay, a U.S. naval logistics station in The Philippines. My face whacked the asphalt. Lying in the path of oncoming traffic, I couldn’t move a muscle. After 45 seconds of terror, I was able to stand up and haul myself to the other side.
Six months later, after dealing with symptoms like my left leg buckling unexpectedly and being extra tired hauling my tools around on the job, a doctor told me I had amyotrophic lateral sclerosis — a 100% fatal disease. “What’s going to happen?” I asked. “You’re going to be paralyzed,” he said.
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