Opinion: Making the case for fair compensation in clinical trials

I’ve been on three sides of the health care equation: I’ve beaten stage 4 colorectal cancer, I’m the mother of a son with an ultra-rare genetic abnormality, and I now work as the chief patient officer for Parexel, one of the world’s largest clinical research organizations. Having seen what people go through as they navigate the health care system and try to participate in clinical trials, I know that the road to participation must be smoother and easier — and not a drain on their bank accounts.

Fully engaged and supported participants form the foundation for successful clinical research. Yet for many people, the financial considerations associated with trial participation — loss of earnings due to time off work, travel expenses, child care costs, and other expenditures — pose significant barriers. These financial obstacles often deter people from enrolling in or continuing with clinical trials, ultimately delaying the progress of medical advancements.

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