Opinion: Listen: The coercion built into medical privacy consent forms
Alex Rosenblat is particularly careful when it comes to her digital privacy. She requests to fill out paper forms instead of digital ones; she documents and tracks what she signs. But even her diligence can’t always save her. Rosenblat recently spent months retracing her digital steps after Phreesia, a company that collects demographic information, claimed to have her authorization to share her data — authorization she knew she hadn’t consented to.
“I was just very deeply offended that my privacy could be so easily violated,” Rosenblat said. “It was a moral outrage that inspired me to use my extremely limited hands free time away from my newborn and my toddler and everything else to pursue this.”
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