STAT+: Gene therapy can transform life for people with hemophilia. But some patients don’t want it.
Given everything he’s been through, Bobby Wiseman says he should have been dead instead of celebrating the birth of his first grandchild several days ago.
Wiseman, 51, who lives near Sacramento, was diagnosed as an infant with hemophilia, the rare genetic disease that prevents blood from clotting. He tested positive for HIV and hepatitis C when he was 11 after catching the viruses from contaminated blood-clotting products. As a teenager, he spent 45 days hospitalized in a coma from massive gastrointestinal bleeding.
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