A system that must be gamed or learnt: a patient’s perspective

It’s easy to complain about disappointing experiences while receiving healthcare. Indeed, discussion of the ways that healthcare can ignore, dehumanise, and generally grind patients to a pulp can reach fever pitch among those of us with chronic medical conditions. There’s a lot of hot air and hyperbole in this talk, but there’s just as much truth; patients are fatigued for good reason.As someone with type 1 diabetes, I don’t really have a choice about interacting with the healthcare system. Whether I’m in my adopted country, the UK, or my birth country, the US, this interaction can be gruelling. I’ve missed so much work time travelling across London to medical appointments and waiting in crowded rooms—with limited wi-fi—to spend mere minutes with a healthcare provider, that it has affected my career. In the US, I’m haunted by the uncertainty about whether my insulin, which I need to survive, will be funded.Despite…
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