Vertex sues U.S. government over access to fertility support services for Casgevy patients
One of the makers of the Casgevy — the world’s first CRISPR-based medicine — filed a lawsuit…
Category: sickle cell
This federal rule didn’t stop coercive sterilization — but it blocked contraceptive access. Can it be fixed?
Sonya Borrero didn’t learn about forced sterilization in medical school. She learned about it from…
Federal officials and physician groups express outrage over revelations of recent coercive sterilizations
Federal officials, medical organizations, and reproductive health advocacy groups have expressed outrage in response to…
The doctor would treat her sickle cell pain crisis — if she promised not to get an abortion
Here are some things A. was told when she arrived at the hospital one night…
Listen: More tumult at BIO & coercive care for sickle cell patients
How does a drug industry lobbying group move forward after years of upheaval, including having…
‘Coercive Care’ investigation reveals how doctors have pressured sickle cell patients into unwanted sterilizations
Dear Readers, I want to bring your attention to a deeply disturbing but vital series…
How doctors are pressuring sickle cell patients into unwanted sterilizations
BATON ROUGE, La. — The surgery was supposed to alleviate worry, but now, years later,…
STAT+: CMS will use outcomes-based agreements in bid to help Medicaid pay for sickle cell gene therapies
In response to concerns over multimillion-dollar price tags for new gene therapies for sickle cell…
After ‘SNL’ skit on sickle cell CRISPR therapy, advocates cite errors and stereotypes
Mary Brown was sipping coffee at home in Ontario, Calif., Sunday morning when a friend…
Gene therapy offered this 7-year-old freedom. The price: a grueling year
PHILADELPHIA — The meds Shelby Campbell needed for her rare blood disorder stopped working just…
STAT+: Could sickle cell someday be treated not with CRISPR, but with a pill?
Two gene therapies were approved for sickle cell disease last week, but for many researchers…
STAT+: Bone marrow transplant advance could widen use of this less buzzy cure for sickle cell disease
SAN DIEGO — The sickle cell community has for the past few days been buzzing…
Opinion: New sickle cell disease CRISPR treatments can’t make up for the shortage of adult hematologists
After decades of limited progress in the treatment of sickle cell disease (SCD), both patients…
STAT+: After sickle-cell screwups, Bluebird Bio’s only option might be a company sale
The approval Friday of Bluebird Bio’s gene therapy for sickle cell disease should have been…
STAT+: A Q&A with the CEO of CRISPR Therapeutics on a historic approval and the road ahead
Editas Medicine, CRISPR Therapeutics, and Intellia Therapeutics were all started in the 2013-2014 time frame…
In historic decision, FDA approves a CRISPR-based medicine for treatment of sickle cell disease
The Food and Drug Administration on Friday approved the world’s first medicine based on CRISPR…
New gene therapies confront many sickle cell patients with an impossible choice: a cure or fertility
As a teenager, Marie Tornyenu was always having to explain herself. If it wasn’t the…
STAT+: How sickle cell became the first disease treated by CRISPR
Nearly a decade ago, consultants delivered to Rodger Novak a kind of Sears catalog of…